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Monday June 26, 2006
19 Comments

Book Review - Fighting For Dear Life

076420243X.jpgAlready more than a year has passed since Terri Schiavo died. Though her story is well known and was the subject of near-constant media coverage, I will repeat the most important points. In 1990, Schiavo, then 26, collapsed in her home and experienced both respiratory and cardiac arrest. She was in a coma for 10 weeks and was subsequently diagnosed as being in a persistent vegetative state (PVS). Her husband Michael was determined to preserve her life and to seek therapy to increase her quality of life. But after successfully suing a doctor who had failed to properly diagnose bulimia before her collapse, he had a sudden change of heart. While he was awarded over a million dollars, most of which was for Terri's medical care and therapy, he did very little for her. In 1998, once it became legal to do so, he petitioned a court to have Terri's feeding tube removed. Terri's family (the Schindlers) fought desperately to keep her alive. The battle raged until 2005 when the tube was removed and Terri was allowed to dehydrate over a period of thirteen days until she finally died. Rush Limbaugh declared the day of her death the day America hit rock bottom. Many people, both within the United States and outside, would agree.

David Gibbs was the attorney who represented the Schindler family throughout much of their battle for Terri's life. He did this on a pro bono basis. I suppose it was inevitable that he would write a book. I found it interesting that his memoir, Fighting For Dear Life, is published by Bethany House, a Christian publisher. In this book, which is due for publication in August, Gibbs provides an interesting inside perspective on the fight for Terri's life.

While his denominational background is not clear, it seems that Gibbs is a Christian and he certainly writes from that perspective. He often mentions praying with the Schindler family, committed Roman Catholics, and praying for various aspects of the case. He seems to have fought both on his knees and in the courtroom. While there are only a few mentions of Scripture, it is clear that Gibb's desire to save Terri was born primarily from a biblical perspective of the value of life.

While I, as with so many people, followed the Schiavo case fairly closely over the final few weeks of Terri's life, I do not know enough about it to know whether there is information provided in this book that is new. I have not read any of the other books dealing with this tragedy. Certainly, though, the perspective offered by Gibbs is unique and in that way, very interesting. Gibbs describes what it was like to be in the midst of the battle. He describes interaction with judges and lawmakers, friends and family. He describes the often frantic efforts to save the life of a woman who was loved so desperately by her family.

It is difficult, when reading this account, not to regard Michael Shiavo as a villain. And it seems that he was just that. It is exceedingly clear that he acted very often out of motives that were selfish. While it seems that he was initially willing to fight with and for Terri and to stay with her for the rest of his life, his resolve soon failed. Only months after her collapse he began to see other women and had a long-term affair that produced two children before Terri's death. During the final days of Terri's life, he was especially selfish, denying her family access to her and, after her death, to her body. They were not even told of her funeral until it was over. In a move of almost despicable irony, Michael had her grave marked with the words "beloved wife."

Fighting For Dear Life is an interesting book. It's a shocking book. It is nearly enough to make a reader scream in frustration as he sees attempt after attempt to save Terri's life end in failure. This woman, though certainly handicapped, was just as certainly alive and active. Her death was a grave injustice that does mark a low point in American history. Perhaps reading this book or another like it will stir people to grapple with the issues that led to her untimely and unfair death. We can only hope that her death will not have been in vain.

Comments (19) »


1. Mike Hess
June 26, 2006
11:50 AM

Both Gibbs and his father come from a very independent Baptist background. In fact, most of the churches that they deal with are of the KJVO persuasion and on the hysteric side of fundamentalism. However, I do respect much of the work that they do. I had David Gibbs for a Summer class while attending Hyles-Anderson college back in the mid nineties. He was always very nice and was a gentlemen. Though I would strongly disagree with many of his associations, I would call his work a worthy endeavor. Even though some of the people that he defended in the past I believe were obviously guilty.


2. deborah
June 26, 2006
3:19 PM

Was there any mention in the book of the one thing that could have Terri’s life - an advanced directive or living will? It is only through her failure to create this document that this entire tragedy was able to unfold. If anyone does not have one, you may find your loved ones in this kind of battle. There are a number of webpages that offer advance directives, living wills and medical proxies. If you want to avoid what happend to her, get one.


3. Tim Challies
June 26, 2006
3:29 PM

“Was there any mention in the book of the one thing that could have Terri’s life”

Yes, there was.

And you’re quite right. An advance directive like that would have saved Terri’s life.


4. Jabbok
June 26, 2006
4:46 PM

Not only might it have saved her life, it could also have saved Michael Shiavo from the perception of being a “villain” if her directives were “DNR”. Do Not Resusitate.

I recently heard of a man who had “DNR” tattooed on his chest. This is not legally binding and he was quite upset when he awoke from his heart-attack to discover that the perimedics had resusitated him. He also had his directives written out but his wife was unable to locate a copy to give to the Emergency Medical Team.

Write it down, give a copy to your wife, a copy to the kids and keep a copy in your billfold.


5. billmelone
June 26, 2006
11:44 PM

I don’t mean to open up the discussion again, but how can it be called an “untimely and unfair death”? The post mortem showed that she was as in a persistent vegitative state as anyone could be—she was totally brain dead. DNR doesn’t matter because it wasn’t possible to resuscitate her.

Her husband wasn’t doing honorable things, but neither were the conservative politicians—what was Rick Santorum (R-PA) doing in Florida? What was Bill Frist doing making a diagnosis by video? Raising money for their party, taking advantage of something that they didn’t need to get involved in.

But the bigger issue is ignoring the basic of this case—she wasn’t able to be resuscitated. We define life’s beginning as being at conception, but when does it end? It seems that God was more in charge of this ‘untimely’ death than anyone else.


6. Jeri
June 27, 2006
12:16 AM


“DNR doesn’t matter because it wasn’t possible to resuscitate her.”

Terri Schiavo breathed and her heart beat on her own. She did not need resuscitation, just food and water. She was alive.


7. ella
June 27, 2006
7:51 AM

she was only alive because others were keeping her alive. her body couldn’t live on its own.

i don’t believe that this was a good day in the history of the usa - it was a desperately sad situation from which no good could come - but i can name many more days of which we should be far more ashamed.


8. Tim Challies
June 27, 2006
8:25 AM

“she was only alive because others were keeping her alive. her body couldn’t live on its own.”

The same is true of infants. All Terri needed was assistance in eating. She breathed on her own, her heart beat on its own, etc. She laughed, followed people with her eyes and even tried to kiss people. That doesn’t sound like the actions of a “vegetable.”


9. billmelone
June 27, 2006
11:41 AM

Tim, are you sure about that? That is what was spun around in conservative discussions but the autopsy showed she was completely brain dead. We always viewed brain dead people as dead in the past, why did we all of a sudden think that she was alive? Especially with older people that are brain dead, we feel no need to keep the life support machine on. It seems that the scandal was more the typical cultural idea that its scandalous to lose our life early.


10. Tim Challies
June 27, 2006
11:44 AM

“That is what was spun around in conservative discussions but the autopsy showed she was completely brain dead.”

I think there was a lot of misinformation going both ways. But I don’t think the autopsy proved anything conclusively. PVS is, after all, very subjective. And despite all of our medical knowledge, the brain remains a great mystery. Read the descriptions of what Terri could do and you’ll have to agree that she didn’t seem to be a “vegetable.”


11. billmelone
June 27, 2006
12:02 PM

Where can I get those descriptions?
This article addresses the video put out by her parents that apparently showed she could do a number of things: http://www.cnn.com/2005/US/06/15/schiavo.autopsy/index.html
Her brain was half of its normal size, discolored and such. I think that a lot of people were so caught up in the other realities of the culture war that they projected this as a similar situation.


12. Jon (4ever4given's h-band)
June 28, 2006
7:20 PM

Tim,
Thanks for the review. Although I disagree with the above comment. Teri did not need assistance with eating, she needed the food placed in her stomach. If a person in her condition is fed by mouth, the most likely senario is that she would aspirate on the food or water and develop “aspiration pneumonia” and die. As bad as that sounds, if is actually a pretty human way of dying and is relatively painless. Until the invention of feeding tubes (Peg tubes) this was a very common cause of death in the extreme elderly and debilitated. If the person trying to get in the nursing home to give her a drink would have succeeded, they would likely have drowned her.


13. 4ever4given
June 28, 2006
8:42 PM

Hi honey (That would be my husband, Jon up there)… even though you are on the downstairs computer (studying for boards)… and even though this is the first time (in comparison to my long-winded self) I have seen you make a comment (actually 2 today on Challies) on any blog (though I know you have been reading Challies for alot longer than me)… I have to say I appreciate your input on this… considering what you do for a living.

(Since you are studying so hard… perhaps I ought to bring you a big bowl of ice cream now… and a few “Far Side” comic strips so you can take a break)

:-)


14. Tim Challies
June 28, 2006
8:49 PM

Jon,

Shouldn’t you be studying? ;)


15. Jeri
June 29, 2006
9:33 AM

Quote: We always viewed brain dead people as dead in the past, why did we all of a sudden think that she was alive? Especially with older people that are brain dead, we feel no need to keep the life support machine on.

I disagree with both of those sentences. The criteria of using brain waves to verify death is a modern development. Breathing and heartbeat were the criteria before that.

And the statement about older people is interesting, because I have just witnessed this firsthand. My daughter’s best friend’s grandmother had a stroke, and they resuscitated her and put her on life support equipment. After determining that she was brain dead, they removed the support, but lo and behold, she kept breathing! I don’t know every detail, but the bottom line was that they withheld food and water, and after 8 days she died…of dehydration. What should they have done? Advances in technology have brought about many dilemmas for us like this. But as I searched the Scriptures over those days while they waited for her to die, I saw that

“the Spirit of God has made me, and the breath of the Almighty gives me life”…and ” For as long as life is in me, and the breath of God is in my nostrils…” and “If He should determine to do so, If He should gather to Himself His spirit and His breath, all flesh would perish together, and man would return to dust.”
(Job 33:4, 27:3, 34:14, 15)

The breath we breathe is from God and it is God’s, not ours to decide what to do with. We are not to withhold good when it is in our power to do it. It’s my belief that this old lady should have been fed and kept in as much comfort as possible until she stopped breathing. That is what I would have done had it been my mother.


16. billmelone
June 29, 2006
2:47 PM

I know that judging life by brain waves is modern, but only because the technology to do that is modern. The follow up question is, what do we do—keep people on life support machines forever? We do if they are not brain dead, but if they are brain dead (which no one on this comment thread has answered whether Schaivo was brain dead, except Tim by way of saying that she did things brain dead people don’t do, which still doesn’t interact with the details of the autopsy), then they are going to lose their heart beat and breath, not because we chose to take it away, but because God chose to take it away by making the person brain dead in the first place. God made the body to be interactive and if the central nervous system is completely shut down everything else will shut down too. It seems life support machines are good for supporting life if there is life in the central nervous system, but if there isn’t, why would we keep the support system on? And on for how long?


17. Jeri
June 29, 2006
8:26 PM

billmelone, I believe it’s safe to say that if tests reveal brain death, and the person cannot breathe or have a heart that beats on their own, they have died and should be removed from life support. But as in the case of the lady I told about, she no longer needed life support, just water and nutrition. She might have died 8 days later anyway, who knows (except the God who gives us breath and takes it, too.). You said that brain dead people “are going to lose their heart beat and breath, not because we chose to take it away, but because God chose to take it away.” But you see this old lady didn’t, at least not immediately, (it really surprised the doctors and was agonizing for the family) and Terri Schiavo didn’t.


18. One Salient Oversight
July 2, 2006
12:44 AM

The videos showing her interacting were also heavily edited. I read somewhere that they taped for hours and hours and hours in order to find a short stretch where her head movements actually managed to follow what was going on. Bottom line - the “video” of her supposed reactions were not typical of what actually occurred.

Michael’s change of heart probably came about as a result of him coming to terms with Terri as being in a PVS. He held out hope that all she needed to do was maybe “wake up” eventually and, then when he accepted the fact that she was in a PVS that would not heal, he accepted in his own mind that Terri was, in fact, dead.

The clamoring of Evangelicals behind the entire Schiavo case was nothing short of embarrassing. Evangelicals, informed entirely by conservative politics, right-wing talking points and the inherently unfactual Fox news, were unable to view the case from an objective point of view.

I believe in Sola Scriptura. The Bible is sufficient and it is the only source of revelation. Yet somehow Evangelicals, including yourself Tim, have imbibed right wing values as being biblical. The irony of your stance against modern deceptions in the church is that you have been yourself deceived by biased information delivered to you from disreptuable news sources.

And, of course, that’s the reason why I reacted so strongly to your anti-global warming stance. It’s just another example of how blinkered you are. The entire issue is so cut and dried that when you start saying “the jury is out and there are two sides of the argument” you might as well be talking about the possibility of a flat earth.

Terri died years before her heart stopped beating. Michael Schiavo married a woman after his wife died. Terri’s brain was so atrophied by the time of her autopsy that it was obvious that she was “brain dead”.

And you’re still not on my bookmarks list. See you again in six months.


19. billmelone
July 2, 2006
2:52 PM

Jeri, every case is different and it sounds like the woman that you told about was a case where more could have and should have been done. I am all for the stance of caring for the elderly and dying, and any lack thereof in our culture is evil. But evangelicals love the culture war because it brings us a sense of justification, and I think conveniently overlook the details of Schiavo’s death. She’s been made a pin up for our cause, and the whole case has vitiated christian witness.


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